Showing posts with label dermatomyositis. Show all posts
Showing posts with label dermatomyositis. Show all posts

Monday, September 8, 2008

Just Take Your Medicine, already...

First this at 0730...
Then this...

New meds start today. I am looking forward to the energy that the IV steroid will give me, but not to the "Ick" feeling the Methotrexate could give me. Oh well, what can you do? Those little orange pills don't look so bad, do they? The 2 big calcium tabs are the gaggers. The yellow one is Folic Acid. Suppose to help keep my hair from falling out. Could have used that starting 6 months ago, let me tell ya. The good thing is I only have to take the Methotrexate once a week. I'll increase the dose each week. I can't find anyone my age with this disease, so I'll blog about it in hope that we can connect and compare notes!
In the mean time, with all of the energy I am suppose to have, I might take the offer of painting and organizing the house of my friend and neighbor, Jennifer...Thanks Jen!!
l, Dana

Monday, May 5, 2008

give ME a second to think about it...


Just like the title of D's blog, I was faced with "Give me a second to think about it" today. More like "What did you say??" "Did you actually say Immunosuppressant drugs?" I swear, I should REALLY follow my own advice and take someone with me to the Dr. so that when they say something like that and I "check out" the person with me is there to catch anything else the Dr. has to say. I did hear muscle biopsy Thursday and managed to get that down in my planner. For crying out in the night. I am not a sick person and am not ready to be one!!!!!!!. Could someone tell my body? Loudly?? Does my body know what this means? Doesn't it remember that I am not good at remembering to take medication? That I have worked hard at building up my endurance at boot camp? That I am a nurse working in a hospital and can't be immunosuppressed?? That I am a wife and mother, daughter, sister, friend and have to take care of other people? OK. There is a plan at work, I know. I just have to get a grip and...I just have to get a grip.